I just finished reading Ghost Boy by Martin Pistorius.
I learned a lot from this book, especially that we should not judge a book by its cover. One person discovered Martin was trapped inside his body, that he was awake inside, not a ‘vegetable’. After years of being sick, Martin started to wake up. It took time, but eventually, he knew all that was happening around him, though at the time he couldn’t communicate with the world.
I’ve included a link to NPR’s Invisibilia’s. Here Lulu Miller tells the story of Martin Pistorius, whose body began to slowly shut down when he was 12 years old. For years, he was locked in his own body with nothing but his thoughts. (2015 interview)
Ghost Boy is written by Martin. Through it we get a glimpse of the life he lived and how he is today.
I found the book inspirational. Anyone working with someone who has a communication challenge should read it. (It’s also a recorded book.)
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